information resource
NORD, the National Organization for Rare Diseases, is an advocacy organization dedicated to improving the lives of individuals and families living with rare diseases. Its offers a database of reports on more than 1,200 diseases, plus a resource center with free webinars, fact sheets, infographics and other helpful materials.
The National Cancer Institute My Pediatric and Adult Rare Tumor Network (MyPART) is a group of scientists, patients, advocates, and healthcare providers who want to help find treatments for rare cancers. They are currently are working on childhood, teen, and young adult solid rare tumors that have no cures. As part of that effort, their …
MolecularMatch provides physicians, nurse navigators, or patients information on specific treatments for specific mutations and cancers. They match a patient’s personalized patient details to clinical trials, targeted therapies and immunotherapies, and provide linkages to related literature and publications.
Chemocare is designed to provide the latest information about chemotherapy to patients and their families, caregivers and friends. The information on Chemocare.com is provided by the medical professionals at Cleveland Clinic Cancer Center. The content is updated frequently with the latest and most up-to-date chemotherapy related information.