John Hopper, President of FCF and co-chair of the National Organization for Rare Disorders’ (NORD) Rare Cancer Coalition, moderated a NORD webinar on Rare Cancer Day – Thursday, September 30. This 45-minute webinar, “Rare Cancers: Breaking Down Barriers to Diagnosis, Treatment and Research“, discusses rare cancer challenges and offers insights to assist those who are impacted.
Topics covered include the challenges rare cancer patients face accessing appropriate screenings, effective therapies, and research opportunities, plus the difficulties clinicians and researchers encounter because of limited access to diagnostic tools, sparse clinical study data and small research populations. In addition to John Hopper, other panelists featured in the webinar include:
- Margarita Raygada, PhD – Research Geneticist and Oncology Genetic Counselor, National Institutes of Health, National Cancer Institute
- Simron Singh, MD, MPH – Medical Oncologist, Sunnybrook Health Sciences Center
- Robert Taylor – Patient Advocate, Life Raft Group and SWOG Cancer Research Network.
A recording of the event is viewable below.
About Rare Cancer Day: Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by the NORD Rare Cancer Coalition™, which is composed of 27 rare cancer-specific member organizations, Rare Cancer Day is observed each year on September 30 to highlight the challenges patients face and to unify individuals living with rare cancers for awareness and early diagnosis.