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Fibrolamellar Cancer Foundation
  • About Fibro
    • What is Fibrolamellar?
    • Fibrolamellar FAQ’s
    • Faces of Fibrolamellar
    • A Mother’s Story
    • Newly Diagnosed
  • Treatments
    • Introduction
    • Surgery
    • Chemotherapy
    • Targeted Therapy
    • Immunotherapy
    • Interventional Radiology
    • Radiation
    • Palliative Care
  • Research
    • Publication Library
    • Research Perspectives
    • Research Overview
    • FCF Funding Priorities
    • Funded Projects
    • Total Funding and Impact
  • Resources & Events
    • Connect with Other Patients
    • Events Calendar
    • Find A Doctor
    • Clinical Trial Patient Assistance Program
    • Helpful Resources
    • Glossary of terms
  • Clinical Trials
  • Join the Fight
    • Donate Tumor Tissue
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Home » Resources » Natural History Study of Rare Solid Tumors

The Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI), is enrolling patients to better understand how rare solid tumors develop and grow. Natural history studies like this will help researchers learn more about fibrolamellar carcinoma (FLC) and other rare cancers and help shape the design and development of clinical trials to test new treatment options.

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Patient participation opportunities

Upcoming FCF-sponsored events

Fibrolamellar Scientific Summit 2025
June 9, 2025 - June 11, 2025

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6:30 PM - Elephants and Tea: Healing Through Writing Workshop Series - Expectations
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Webinar: Self-Care - Practical Approaches at Work and Beyond
04 Dec
December 4, 2024    
1:00 pm EST - 2:00 pm EST
  • Other partner-sponsored event
Please join Cancer and Careers for their final webinar of a 12 part series. This session focuses on self-care. Between doctor appointments, treatment schedule and [...]
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Elephants and Tea: Healing Through Writing Workshop Series - Expectations
18 Dec
December 18, 2024    
6:30 pm EST - 8:00 pm EST
  • Other partner-sponsored event
Please join Elephants and Tea "Healing Through Writing Workshop" series.  This session's topic is Expectations. Learn to use journaling as a form of self-therapy in [...]
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Events on December 4, 2024
04 Dec
Webinar: Self-Care - Practical Approaches at Work and Beyond
4 Dec 24
Events on December 18, 2024
18 Dec
Elephants and Tea: Healing Through Writing Workshop Series - Expectations
18 Dec 24

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