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Fibrolamellar Cancer Foundation
  • About Fibro
    • What is Fibrolamellar?
    • Fibrolamellar FAQ’s
    • Faces of Fibrolamellar
    • A Mother’s Story
    • Newly Diagnosed
  • Treatments
    • Introduction
    • Surgery
    • Chemotherapy
    • Targeted Therapy
    • Immunotherapy
    • Interventional Radiology
    • Radiation
    • Palliative Care
  • Research
    • Publication Library
    • Research Perspectives
    • Research Overview
    • FCF Funding Priorities
    • Funded Projects
    • Total Funding and Impact
  • Resources & Events
    • Connect with Other Patients
    • Events Calendar
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    • Clinical Trial Patient Assistance Program
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Home » Resources » Natural History Study of Rare Solid Tumors

The Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI), is enrolling patients to better understand how rare solid tumors develop and grow. Natural history studies like this will help researchers learn more about fibrolamellar carcinoma (FLC) and other rare cancers and help shape the design and development of clinical trials to test new treatment options.

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Patient participation opportunities

Upcoming FCF-sponsored events

Fibrolamellar Scientific Summit 2025
June 9, 2025 - June 11, 2025

Complete calendar of events

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5:00 PM - Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
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1:00 PM - The CRISPR Revolution: How Genomic Engineering is Transforming Cancer Immunotherapy
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11:30 AM - Triage Cancer: Cancer & Disability Insurance
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5:00 PM - Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
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Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
08 Jun
June 8, 2023    
5:00 pm EDT - 5:30 pm EDT
30 Minute Tune-up journaling session for AYA patients, survivors and caregivers
  • Other partner-sponsored event
  Join Jean Rowe, LCSW, Certified Journal Therapist, for a weekly journaling program. This popular 30-minute journaling workshop is sponsored by Cactus Cancer Society, an [...]
More Info
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
15 Jun
June 15, 2023    
5:00 pm EDT - 5:30 pm EDT
30 Minute Tune-up journaling session for AYA patients, survivors and caregivers
  • Other partner-sponsored event
  Join Jean Rowe, LCSW, Certified Journal Therapist, for a weekly journaling program. This popular 30-minute journaling workshop is sponsored by Cactus Cancer Society, an [...]
More Info
The CRISPR Revolution: How Genomic Engineering is Transforming Cancer Immunotherapy
20 Jun
June 20, 2023    
1:00 pm EDT - 2:00 pm EDT
  • Other partner-sponsored event
  This event, sponsored by the Cancer Research Institute as part of "Cancer Immunotherapy Awareness Month" discusses the CRISPR revolution and how genomic engineering is [...]
More Info
Triage Cancer: Cancer & Disability Insurance
21 Jun
June 21, 2023    
11:30 am EDT - 1:00 pm EDT
  • Other partner-sponsored event
  Please join Triage Cancer for their free educational webinar discussing cancer and disability insurance, led by Triage Cancer Staff Attorney, Nicole Jolicoeur, Esq. This [...]
More Info
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
22 Jun
June 22, 2023    
5:00 pm EDT - 5:30 pm EDT
30 Minute Tune-up journaling session for AYA patients, survivors and caregivers
  • Other partner-sponsored event
  Join Jean Rowe, LCSW, Certified Journal Therapist, for a weekly journaling program. This popular 30-minute journaling workshop is sponsored by Cactus Cancer Society, an [...]
More Info
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
29 Jun
June 29, 2023    
5:00 pm EDT - 5:30 pm EDT
30 Minute Tune-up journaling session for AYA patients, survivors and caregivers
  • Other partner-sponsored event
  Join Jean Rowe, LCSW, Certified Journal Therapist, for a weekly journaling program. This popular 30-minute journaling workshop is sponsored by Cactus Cancer Society, an [...]
More Info
Events on June 8, 2023
08 Jun
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
8 Jun 23
Events on June 15, 2023
15 Jun
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
15 Jun 23
Events on June 20, 2023
20 Jun
The CRISPR Revolution: How Genomic Engineering is Transforming Cancer Immunotherapy
20 Jun 23
Events on June 21, 2023
21 Jun
Triage Cancer: Cancer & Disability Insurance
21 Jun 23
Events on June 22, 2023
22 Jun
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
22 Jun 23
Events on June 29, 2023
29 Jun
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
29 Jun 23

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