RXAssist can help patients learn about ways to use pharmaceutical company programs and other resources to help reduce medication costs. Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need – all in one place.

Medicine Assistance Tool (MAT) matches patients with resources and cost-sharing programs that may help lower out-of-pocket medicine costs, whether or not you have insurance. MAT provides a search engine designed to help patients, caregivers and health care providers learn more about the resources available through the various biopharmaceutical industry programs. MAT is not its own patient assistance program, but rather a search engine for patient assistance resources offered by the biopharmaceutical industry.

The HealthWell Foundation helps the underinsured afford critical medical treatments — because no one should go without essential care. The HealthWell Foundation is an independent non-profit organization that provides financial assistance to adults and children to cover the cost of prescription drug coinsurance, copayments, deductibles, health insurance premiums and other selected out-of-pocket health care costs.

Cleaning For A Reason connects households battling cancer with local companies that can clean their homes for free. When cancer makes life at home difficult, their network of residential cleaners, cleaning industry volunteers and community volunteers come together to support cancer patients and their families. They serve all 50 states and Canada.

Cancer Financial Assistance Coalition is a coalition of organizations helping cancer patients manage their financial challenges. To find out if financial help is available, CFAC offers a searchable database that can identify member organizations that can potentially provide targeted financial assistance.

The Social Security Administration has designated fibrolamellar as one of the diseases which may be fast tracked to get disability designation. The official announcement details from August 21, 2018 are included here.

NCCF is committed to providing need-based financial support to young adult survivors who are pursuing higher education throughout their treatment and beyond. Furthermore, the Foundation promotes awareness and prevention of cancer within the young adult community.

Healthcare Hospitality Network is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities. Hospital hospitality houses (HHH) provide free or significantly reduced cost lodging to patients and their families while receiving medical care away from their home communities. Unlike a hotel, HHHs provide opportunities for those going through similar stressful situations to come together as a community where they can support one another. HHHs have shared kitchens, common living areas and private bedrooms just like a home, creating a warm and comfortable place far from home.

NORD, the National Organization for Rare Diseases, is an advocacy organization dedicated to improving the lives of individuals and families living with rare diseases. Its offers a database of reports on more than 1,200 diseases, plus a resource center with free webinars, fact sheets, infographics and other helpful materials.