Lotsa Helping Hands provides an easy way to organize help for people in need by creating a central place to coordinate meals and communicate with friends & family. Its service brings together caregivers and volunteers through online communities that organize daily life during times of medical crisis. Its care calendar can be used to assign meal deliveries and coordinate rides to appointments. Its announcements and Well Wishes help keep the community up-to-date and offer emotional support.
Chemo Angels offers support to those who find themselves in the most challenging situation of their lives – battling a cancer diagnosis and undergoing IV chemotherapy or intensive immunotherapy treatment. Chemo Angels’ volunteers support their “buddy” throughout their journey with cards, uplifting messages, supportive words and lots of positive energy. The encouragement Chemo Angels provide helps give patients the comfort and confidence of knowing they are not alone in their fight.
Stupid Cancer provides resources for those affected by young adult cancer. It offers a lifeline to the adolescent and young adult cancer community by connecting them to age-appropriate resources and peers who get it. The organization builds online and offline support communities nationwide through local events, social media, educational workshops, an international annual conference and a live talk radio podcast, The Stupid Cancer Show.
What Helped Get Me Through: Cancer Survivors Share Wisdom and Hope. This book, edited by Julie K. Silver, MD, relates the experiences of hundreds of cancer survivors who candidly relate what helped get them through every aspect of the cancer journey.
Patient Airlift Services arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially. PALS also arranges volunteer flights for family members of patients as compassionate missions, to ensure patients have support when they are away from home for long periods.
St. Jude Children’s Research Hospital is based in Memphis, TN but has affiliate care throughout the United States. Families never receive a bill from St. Jude for treatment, travel, housing or food. St. Jude accepts insurance but many services provided by St. Jude have never been covered by insurance, and will not be in the future.
RXAssist can help patients learn about ways to use pharmaceutical company programs and other resources to help reduce medication costs. Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need – all in one place.
Cleaning For A Reason connects households battling cancer with local companies that can clean their homes for free. When cancer makes life at home difficult, their network of residential cleaners, cleaning industry volunteers and community volunteers come together to support cancer patients and their families. They serve all 50 states and Canada.
The Social Security Administration has designated fibrolamellar as one of the diseases which may be fast tracked to get disability designation. The official announcement details from August 21, 2018 are included here.