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Fibrolamellar Cancer Foundation
  • About Fibro
    • What is Fibrolamellar?
    • Fibrolamellar FAQ’s
    • Faces of Fibrolamellar
    • A Mother’s Story
    • Newly Diagnosed
  • Treatments
    • Introduction
    • Surgery
    • Chemotherapy
    • Targeted Therapy
    • Immunotherapy
    • Interventional Radiology
    • Radiation
    • Palliative Care
  • Research
    • Publication Library
    • Research Perspectives
    • Research Overview
    • FCF Funding Priorities
    • Funded Projects
    • Total Funding and Impact
  • Resources & Events
    • Connect with Other Patients
    • Events Calendar
    • Find A Doctor
    • Clinical Trial Patient Assistance Program
    • Helpful Resources
    • Glossary of terms
  • Clinical Trials
  • Join the Fight
    • Donate Tumor Tissue
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Home » Resources » Natural History Study of Rare Solid Tumors

The Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI), is enrolling patients to better understand how rare solid tumors develop and grow. Natural history studies like this will help researchers learn more about fibrolamellar carcinoma (FLC) and other rare cancers and help shape the design and development of clinical trials to test new treatment options.

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Patient participation opportunities

Upcoming FCF-sponsored events

Fibrolamellar Scientific Summit 2025
June 9, 2025 - June 11, 2025

Complete calendar of events

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5:30 PM - Elephants and Tea Happy Hour for AYA's Facing Cancer
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5:00 PM - Cactus Cancer Society journaling workshop for AYA patients, caregivers
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1:30 PM - Connect Education Workshop: Understanding Diagnostic Technologies & Biomarkers
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5:00 PM - Cactus Cancer Society journaling workshop for AYA patients, caregivers
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5:00 PM - Cactus Cancer Society journaling workshop for AYA patients, caregivers
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Elephants and Tea Happy Hour for AYA's Facing Cancer
06 Jan
January 6, 2023    
5:30 pm EST - 6:30 pm EST
Elephants and Tea Happy Hour for AYA's Facing Cancer
  • Other partner-sponsored event
  Elephants and Tea is a magazine written for and by the AYA cancer community to share their stories. Their mission is to help adolescent [...]
More Info
Elephants and Tea Happy Hour for AYA's Facing Cancer
13 Jan
January 13, 2023    
5:30 pm EST - 6:30 pm EST
Elephants and Tea Happy Hour for AYA's Facing Cancer
  • Other partner-sponsored event
  Elephants and Tea is a magazine written for and by the AYA cancer community to share their stories. Their mission is to help adolescent [...]
More Info
Cactus Cancer Society journaling workshop for AYA patients, caregivers
19 Jan
January 19, 2023    
5:00 pm EST - 5:30 pm EST
Cactus Cancer Society: AYA Journaling Workshop
  • Other partner-sponsored event
Come join other young adults facing cancer in this popular 30 minute drop in journaling workshop sponsored by Cactus Cancer Society. You are welcome to [...]
More Info
Connect Education Workshop: Understanding Diagnostic Technologies & Biomarkers
23 Jan
January 23, 2023    
1:30 pm EST - 2:30 pm EST
CancerCare: Understanding Diagnostic Technologies & Biomarkers
  • Other partner-sponsored event
In this Connect Education Workshop sponsored by CancerCare, the discussion will focus on diagnostic technologies, biomarkers, precision medicine and much more. Registrants can participate either [...]
More Info
Cactus Cancer Society journaling workshop for AYA patients, caregivers
26 Jan
January 26, 2023    
5:00 pm EST - 5:30 pm EST
Cactus Cancer Society: AYA Journaling Workshop
  • Other partner-sponsored event
Come join other young adults facing cancer in this popular 30 minute drop in journaling workshop sponsored by Cactus Cancer Society. You are welcome to [...]
More Info
Cactus Cancer Society journaling workshop for AYA patients, caregivers
02 Feb
February 2, 2023    
5:00 pm EST - 5:30 pm EST
Cactus Cancer Society: AYA Journaling Workshop
  • Other partner-sponsored event
Come join other young adults facing cancer in this popular 30 minute drop in journaling workshop sponsored by Cactus Cancer Society. You are welcome to [...]
More Info
Events on January 6, 2023
06 Jan
Elephants and Tea Happy Hour for AYA's Facing Cancer
6 Jan 23
Events on January 13, 2023
13 Jan
Elephants and Tea Happy Hour for AYA's Facing Cancer
13 Jan 23
Events on January 19, 2023
19 Jan
Cactus Cancer Society journaling workshop for AYA patients, caregivers
19 Jan 23
Events on January 23, 2023
23 Jan
Connect Education Workshop: Understanding Diagnostic Technologies & Biomarkers
23 Jan 23
Events on January 26, 2023
26 Jan
Cactus Cancer Society journaling workshop for AYA patients, caregivers
26 Jan 23
Events on February 2, 2023
02 Feb
Cactus Cancer Society journaling workshop for AYA patients, caregivers
2 Feb 23

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